Quick Update

By the time you read this, it will be Day 14 and Zoe has been home without side effects throughout this cycle.  That is a miracle.  We expect her body to be rebuilding itself and will get some bloodwork done Tuesday to confirm where she is with her ANC and such, but we expect that she will remain out of the hospital until Chemo Cycle VI January 31.



Now that we will be living at home, I have begun to get some supports in place.  I spent some time on the phone today with the director of Lucy's Love Bus, Beecher Grogan, who gets funding for families like ours so that, for example, Zoe can have music therapy at home or, when she's ready, perhaps horse therapy this summer.  Beecher's daughter, Lucy, was also at Children's Hospital Boston years ago and died after four years of treatment for Acute Myeloid Leukemia.  To listen to Beecher was a healing and inspiring experience for me, and I look forward to putting in place some uplifting therapeutic experiences for Zoe.